Oxevision video of the patient in the bedroom, here demonstrated by staff member. [Pic pulled from public domain promo]

Letter to Camden and Islington Mental Health Trust

Camden Borough User Group

Copy to Vincent Kirchner, Maureen Brewster, Adele McKay, Debbie May, Eric Cross & CBUG Members

15 July 2021

Re: Jules Thorn Day Hospital Closure – consultative procedure

Dear Sir/Madam,

We write to express our concern about the way the Jules Thorn Adult Day Unit at St Pancras Hospital has been closed with no option to provide another centre once the building is demolished to make way for the new Moorfields Building.

Since about 1980 the centre has provided care to hundreds of people who are in recovery mode. It has been a place of safety during the day when users have been able to meet their peers and do formal therapy, classes as well as other activities. The presence of a kitchen enabled many people who had difficulties with cooking or no facilities at home to enjoy each other’s company and have a nutritious meal.

Central to the success of the centre was a large donation in 1980 by Jules Thorn of Thorn Electrical; big enough for him to have the centre named after him. The Jules Thorn Charitable Trust may be willing to support another building of this nature and we think that this should be investigated.

Sad to say, the last twenty years have seen the governing bodies of mental health in Camden drive through several cuts to the mental health service and not always replacing losses with new facilities.

The FORDWYCH DAY HOSPITAL in West Hampstead was one of the first to go. This was followed by the FELIX BROWN DAY HOSPITAL, attached to the Royal Free Hospital. All the in-patient wards at THE ROYAL FREE HOSPITAL were next to go, some of them to The Highgate Mental Health Centre.

In recent years we have seen the closure of DALEHAM GARDENS DAY CENTRE, swiftly followed by THE HIGHGATE DAY CENTRE in Kentish Town. There followed the closure of the administrative and counselling centre at THE HOO in Lyndhurst Gardens. Finally, we have seen the closure of the JULES THORN DAY CENTRE in the grounds of St Pancras Hospital. Thus, within about twenty years, many treatment centres have disappeared.

What is more insidious is that The Trust has stated that referrals to Jules Thorn have declined. Is it possible that the Trust has instructed staff to stop referring users to the unit? We heard from a member of staff that this was exactly the case with Daleham Gardens.

Some of the units, including FORDWYCH and THE HOO, have been sold for private development.

No doubt some of these units will be replaced by something else, perhaps run by providers. Here, the lowest bid may be accepted, resulting in a degradation of service down the line.

So here we are, with Jules Thorn, yet another service which has become unavailable, ostensibly because of the pandemic.

We noticed that the presentation focused on crisis services, and we felt that this was used to deflect the issue of Jules Thorn. We do not see Jules Thorn as a crisis service.

The lack of demand, or lack of complaints that it was not available during the Covid period that you have cited is irrelevant as people were afraid to go out and should not be used as proof that people do not want to use it.

What is really concerning is how little real consultation there has been. True, officers of The Trust have spoken informally to users but there appears to have been no PUBLIC CONSULTATION with the wider community, including parents, siblings, friends, relatives, and carers.

The meetings have not been so much consultations as presentations. We have not been asked our views, or what Jules Thorn means to us. You have come with a set of slides of information that you want us to have, and not come with an ear to hear what we think. We do not consider this meaningful engagement.

If one in four of the community have mental health issues, then there must be thousands of people who are suffering and who must get in queues for pills, talking therapies, or home visits, which will not always be satisfactory.

In Camden there are hundreds of people whose lives collapse around them, and they may be left to wander the streets of Camden day and, more worryingly, at night.

We need a PROPER PUBLIC CONSULTATION and the re-provision of a day service which works for all users. Anything less will only do a disservice to the community.

Alternative services in the community were referred to. These often require a Care Act Assessment, which is largely geared towards physical health and not a good measure of mental health needs. Many service users will not be willing or able to complete the assessment as it is so personally invasive and demeaning to go through. The need to pay to access these community alternatives creates inequalities and barriers which goes entirely against the Community Mental Health Framework ethos.

Other services cannot meet the services that were provided at Jules Thorn. To provide other than that which we require would be an abrogation of public duty to the people of Camden.

Kind Regards

Camden Borough User Group

Camden Borough User Group welcomes new members. At the moment we are meeting on Zoom. Please get in touch with us by email if you would like to join us. We meet to discuss our experiences of services and mental wellbeing strategies, and we work in conjunction with local service providers. Drop us a line and say hello! CBUGcommittee@gmail.com

It’s OK to not feel OK – New help leaflet available for download

The C&I Charity is the charity of Camden and Islington NHS Foundation Trust (the Trust) and is a charity registered with the Charity Commission (England and Wales) through the CNWL NHS Foundation Trust Charitable Fund.

The charitable objects of the C&I Charity are;

To assist and support the mental health, wellbeing and recovery of Trust service users within the wider local communities of Camden Islington and Kingston by providing additional support and resources not normally available through statutory authorities.

Grants will be awarded in lots of up to £2000 each.

The Trustees have an overall objective that the grants awarded should be used to help build resilient communities which enables the sustainability of clinical care provided by the NHS.

As funding is limited, the charity is not considering applications received in respect of:

Application Process If you would like an application pack or more guidance please contact Gail.Carter@candi.nhs.uk who will be pleased to discuss outline ideas. Service users can contact hello@sidebysidenetwork.org if you prefer to talk to one of the service user members of the Charity Advisory Group about your idea first. Applications must be costed and have got sponsorship from a member of the Trust’s staff.

If you need help and support during this time there are some useful articles, events and links on the Mental Health Camden website https://mentalhealthcamden.co.uk/news/20/04/coronavirus-and-your-wellbeing

Wellbeing Group

There is a Wednesday online Wellbeing Group to just check in with each other and for social purposes. This is not a therapeutic group. It will be 3-4pm on Wednesdays for the foreseeable future. Please contact Katja for more details. Katja@advocacyproject.org.uk

Camden Borough User Group Meetings

CBUG continues to meet on a virtual platform during this period, and the Patient’s Council also! We have experimented with Zoom and with Jitsi Meet and find that some work better for some folk and not for others. We will try to support everyone to connect with us as best we can, and this is a developing topic. If you want to take part in the meetings (new members welcome), please email Katja@advocacyproject.org.uk. CBUG meetings are open to all Camden residents with mental health issues.

If you are a patient on one of the wards and there is anything that you want to raise with the Patient’s Council please email Katja (address as above). We want to know how things are for you at this time and if there is anything that we can do to help.

Stay safe!

Our web address has changed to CamdenBUG.org . If you know anywhere that CBUG is listed please make sure they have the new url  and our email address CBUGcommittee@gmail.com.

On 1st February 2019 VoiceAbility handed over the reins of the CBUG Mental Health Service User involvement contract to The Advocacy Project. To find out more about them go to The Advocacy Project website,

To contact CBUG directly email CBUGcommittee@gmail.com

The peer mentoring in Camden service is unaffected – Voiceability continues to provide peer mentoring in Camden. www.voiceability.org/services/london-borough-of-camden

Written by Martin Delgado, Peer Debrief Volunteer:

“C&I has taken a bold and innovative approach to improving standards of care for service users by recruiting volunteers to interview patients who have been physically restrained.

The Trust is one of the first in the country to launch the Peer Debrief initiative after the National Institute for Health and Care Excellence (NICE) published new guidelines recommending that individuals who are external from the Trust be brought in to talk to patients after restraint incidents on a ward.  Some volunteers and Trust staff involved in the initiative are pictured above.

The scheme, which is being rolled out across wards at St Pancras and Highgate Mental Health Centre, has so far proved successful and was singled out for praise in the latest Care Quality Commission report, published in March 2018. There has been significant interest in the model from other mental health trusts, who have asked C&I about setting up their own Peer Debrief schemes.

Several of the C&I volunteers are former patients with ‘lived experience’ of mental health issues, though there are plans to expand the team by recruiting more widely among carers and in the voluntary sector.

Kevin Cann, C&I’s Prevention and Management of Violence and Aggression Lead, said: “The Trust’s strategy to reduce restrictive practice is not just about reducing the number of prone restraints. It’s about improving the standard of all restrictive practices so they become safer and less disturbing for service users.”

“Due to the Peer Debrief staff being external to the Trust, patients are more open with them about why the incident happened and how it can be prevented in the future.  This is information we would otherwise not have been able to obtain.”

The interview questions aim to aid consistency; are intended to establish what may have led a patient to behave violently or aggressively; whether the subsequent restraint was carried out in a way which minimised physical and psychological harm to the service user; and how restraint can be prevented in the future.

Interviewees are also offered advice on how to access advocacy if they feel they were subdued in a manner which failed to meet the high standards expected of C&I staff.

Senior managers, however, emphasise that there is no intention to ‘blame’ staff involved in restraint incidents. Individuals are never named in the reports filed by volunteers. The aim is to encourage reporting of restraints and, over time, to reduce their number, leading, it is hoped, to less aggression on wards and beneficial results for all clinical staff and patients across the entire C&I estate.

The data is showing a clear emphasis on the importance of communicating effectively with patients to prevent frustration and anger building up. Recurring themes are beginning to form, with a clear emphasis on improved communication between staff and patients on what is happening and why.

Kevin Cann commented: “The key to reducing violence is early intervention and planning. The nursing teams are always pushed for time but taking preventative measures such as behavioural support planning with the patient to avoid restraint saves a lot of time further down the line.

“After each interview, the volunteers give one copy of their report to the patient and another to the ward manager. Findings are also inputted into a database so that issues which occur repeatedly in debriefs can be spotted and action taken to address concerns.

“Patients have often commented that when staff debrief them after a restraint, there can sometimes be a feeling of ‘punishment’ that shuts down dialogue. That’s why Peer Debrief is so important. It gets across the message that we are curious about how and why it happened and we want to stop it happening again.”

Here you can see the last 9 editions of the Mental Health newsletter supported by VoiceAbility and one from when it was supported by Camden Council

VoiceAbility supported CBUG volunteers Romano, Davide and Mark and Peer Mentors Maria and Jahanara to run two stalls at the St. Mungo’s Mental Health festival on Thursday 5th July.

Above: Mark (CBUG), Ani (VoiceAbility Peer Mentor Coordinator) and Jahanara (VoiceAbility admin volunteer).

The festival was great fun for everyone involved with activities like spray painting & graffiti workshop, drum playing, dancing and hand henna design. There was also a delicious grill, salads and drinks. Our volunteers made the most of this opportunity to promote the Peer Mentoring Project and CBUG with flyers, banners and forms.

All in all it was a great sunny day! 4 people showed an interest in becoming peer mentors, 5 people enquired about CBUG and a couple of people were also interested in Camden Frontline and the Sunday Project (substance misuse groups).

Above: drumming at the festival.

We had interesting conversations with many attendees who showed interest in VoiceAbility projects. We also did some networking with the stalls of other organisations who promote mental health awareness.

There was Yoga, music performance by the charity Key Changes, stand-up comedy, massage and flower arranging!

Good news: Thousands of people who are in mental health crisis and struggling with serious debt will be given breathing space from further interest, charges and enforcement action following a campaign victory by the Money and Mental Health Policy Institute.

The Recovery Space Campaign team delivering the petition

Read the full article on the Money Saving Expert website here: https://www.moneysavingexpert.com/news/protect/2018/04/people-in-mental-health-crisis-to-be-given-breathing-space-from-serious-debt-problems-

Disabled campaigners held a national day of action yesterday (Wednesday 17th April) calling on the government to halt the roll-out of its Universal Credit.

Disabled People Against Cuts (DPAC), Single Mothers’ Self-Defence and WinVisible activists demonstrated in Westminster against the national introduction of the new benefit system.

To find out more about DPAC please visit their website: https://dpac.uk.net/2018/03/national-day-of-action-to-stopandscrap-universal-credit/

You can see the protest reported here:

• There was chaos outside PMQs today. Not that the mainstream media noticed
• Welfare: Protest erupts over universal credit disaster

Check out Matt Barrell’s blog to see more art work like this:

The Parliamentary and Health Service Ombudsman released the following clip:

The changes to sections 135 and 136 of the Mental Health Act introduced by the Police and Crime Act 2017 came into force on 11 December 2017.

Hill Dickinson is a company providing legal advice and support to the NHS and independent healthcare organisations. They have written the following explanation of the changes:

“The key changes are designed to ensure that police officers are able to act more quickly and flexibly, whilst ensuring that people receive the assessment and treatment they need as soon as it is required. The changes relate to:

• places of safety
• time limits
• protective searches
• the duty to consult
• decreased detention times

Definition of ‘public place’

The current wording of section 136 in relation to where police can exercise their powers is open to interpretation and often causes difficulties. Case law over the years has assisted to better define what is ‘a place to which the public have access’, however this remains a tricky area. The changes when they come into force will define this more clearly, by specifically identifying the following places where police cannot exercise their powers under section 136:

‘a) any house, flat or room where that person, or any other person, is living, or;
b) any yard, garden, garage or outhouse that is used in connection with the house, flat or room, other than one that is also used in connection with one or more other houses, flats or rooms.’

Save for in these excluded areas, the police will be able to exercise their powers under section 136 anywhere. This should allow officers to act quickly to protect people found in places such as railway lines, offices and rooftops which have previously not necessarily been considered as ‘places to which the public have access’.

Where practical to do so, the police have an added duty to consult: a registered medical practitioner, a registered nurse or an approved mental health professional, before deciding to remove a person to or to keep them at a place of safety.

Places of safety

The amendments make clear that it will be possible to use a suitable private property as a place of safety, with the consent of the occupier. Therefore, a person’s own home could potentially be a place of safety, as could places such as community centres or other multiple use buildings.

A new provision (section 136A) will prevent the use of police stations as a place of safety for under 18s and also increase the safeguards in place where a police station is used as a place of safety for an adult. Section 136A permits the secretary of state to make regulations regarding the use of police stations as places of safety. It is expected that such regulations will include provision for regular review and ensuring that appropriate medical treatment is available.

Time limits

The maximum period for detention under section 135 and section 136 to allow for a mental health assessment to be completed, is currently 72 hours. This will be reduced to an initial maximum period of 24 hours. The period will still commence from the time when the person arrives at the place of safety or the time a police officer enters the property if he/she subsequently decides to keep the person at that place.

It will be possible, at the end of the 24 hour period, for an extension of up to 12 hours to be granted, but only where it would not have been practicable to assess the person in the first 24 hours i.e. only where the condition of the person makes it necessary to do so. That extension can be granted by the registered medical practitioner responsible for the examination of the patient.
Protective searches

Section 136C will introduce the power for protective searches to be undertaken where a police officer has reasonable grounds to believe that the person may be a danger to themselves, or others, or is concealing an item on his or her person that could be used to cause physical injury to themselves or to others.

Summary

The government has produced guidance to support the implementation of the changes which can be accessed here.

The changes to the legislation have the clear aim of protecting patients’ rights, which is welcome. The reduction in time limits is likely to increase pressure on services, particularly in light of the current bed situation. Effective implementation, particularly in relation to the duty to consult and reduced detention times, will involve local authorities, healthcare providers and the police working very closely together. Policies and procedures will need to be updated and training may be required.”

Further sources of information

You can find the full article by Hill Dickinson here: https://www.hilldickinson.com/insights/articles/mental-health-act-1983-important-changes-coming-force-11-december-2017

The government has issued “Guidance for the implementation of changes to police powers and places of safety provisions in the mental health act 1983” which you can read here: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/656025/Guidance_on_Police_Powers.PDF

The mental health charity Mind have also written about these changes. You can see their article here: https://www.mind.org.uk/news-campaigns/legal-news/legal-newsletter-march-2017/policing-and-crime-act-2017/

An international team led by the University of Oxford in the UK has carried out a huge meta-analysis of almost 120,000 people and their experiences using 21 of the most commonly prescribed antidepressants. The results of this study have been published in The Lancet here.

Please click here to read the news article on IFL Science.

Feel free to leave comments below.

A journalist called Jaime Lowe shares and investigates her experience with mental illness and the drugs used to combat it, in a new book called “Mental: Lithium, Love, and Losing My Mind.” You can watch an interview with her below:

You can read the transcript of this interview on the Democracy Now website here: https://www.democracynow.org/2017/12/28/lithium_love_and_losing_my_mind

CBUG member Pat Kenny has been interviewed on BBC radio 5 Live’s Breakfast and Afternoon shows! Pat spoke about his experience of being tasered by the police while unwell.

You can read the BBC news article by clicking here.

If you would like to listen to the Breakfast show where Pat speaks. Please visit the following website (Pat’s section begins about 1h26 minutes in):

• 5 Live Breakfast 1st Feb 2018: http://www.bbc.co.uk/programmes/b09pkw73

If you would like to listen to the Afternoon show where Pat speaks. Please visit the following website (Pat’s section begins about 9 minutes in):

• 5 Live Afternoon 1st Feb 2018 http://www.bbc.co.uk/programmes/b09pkw79

Please note that you will have to sign in to BBC IPlayer to listen to the audios.

Check out this extended conversation with Johann Hari, author of a controversial new book, “Lost Connections: Uncovering the Real Causes of Depression—and the Unexpected Solutions.”

You can find the full transcript of this conversation here: https://www.democracynow.org/2018/2/2/part_2_johann_hari_on_uncovering

According to this article on the msn website, the answer is yes. What do you think?

From the way you move and sleep, to how you interact with people around you, depression changes just about everything. It is even noticeable in the way you speak and express yourself in writing. Sometimes this “language of depression” can have a powerful effect on others. Just consider the impact of the poetry and song lyrics of Sylvia Plath and Kurt Cobain, who both killed themselves after suffering from depression.

Scientists have long tried to pin down the exact relationship between depression and language, and technology is helping us get closer to a full picture. Our new study, published in Clinical Psychological Science, has now unveiled a class of words that can help accurately predict whether someone is suffering from depression.

Read the rest of the article here: https://www.msn.com/en-gb/health/mindandbody/people-with-depression-are-more-likely-to-say-certain-words/

…and feel free to leave a comment below.

Avatar therapy ‘reduces power of schizophrenia voices’,” BBC news reports. The headline is prompted by a study where people with schizophrenia received a new type of treatment to help them reduce the effect of auditory hallucinations. Continue reading in the link

https://www.nhs.uk/news/mental-health/computer-based-treatment-helps-people-schizophrenia/

After 9 years The Advocacy Project and SURGE will be ending their work in Camden at the end of November, as the new provider – The Centre for Independent living\Camden Disability Action (CDA) – takes over the contract supporting experts by experience to engage with the learning disability community in Camden.

SURGE has achieved an enormous amount in the past 9 years – including setting up the original planning together to be an inclusive forum for people with a learning disability to affect change in the borough; increasing the understanding of learning disability through training many health and social care staff; more recently appearing before the Council as part of our #UnlockingRestrictions campaign.
Please do take the time to look at what we’ve achieved:

• SURGE ‘storify‘ – history and key achievements in pictures, videos and words
• ‘9 years of SURGE’ impact summary (also attached above): designed by the members, giving details of just some of the amazing work and impact we have achieved together
• ‘facts and figures‘ summary – showing the great number of people we’e worked with over the 9 years

According to a Freedom of Information (FOI) request obtained by the news agency “Pulse Today“, the new ‘Sustainability and Transformation Partnerships’ have spent around £21m from March 2016 to May 2017 on management consultants.

As you can see from the chart below, the North Central London partnership (of which Camden is a part) is second from the top of the list…

Find out more on The Pulse website here: http://www.pulsetoday.co.uk/news/commissioning/how-the-nhs-is-spending-millions-on-consultancy-firms/20035171.article

Please see the following link to a blog written by a service user about the Royal College of Occupational Therapists sponsorship deal with Capita

The Guardian have published an opinion piece by someone who does not have lived experience of mental health problems, but who attended a mindfulness class. You can read the article here.

What do you think?

The Social Care Institute for Excellence (SCIE) is running the second ever National Co-production Week in July!

Click here to read an article by Tina Coldham, SCIE’s Co-production Network chair

The National Co-production Week 2017 will take place between 3-7 July. It will celebrate the benefits of co-production, share good practice and highlight the contribution of people who use services and carers to developing better public services.

To find out more visit the website here

You can watch it on Iplayer here: http://www.bbc.co.uk/iplayer/episode/b08pltgy/horizon-2017-why-did-i-go-mad

Consented is publishing a quarterly print magazine and the first issue focuses on mental health and the ways in which our mental well-being is affected by our day to day interactions with the world around us, looking at addiction, race, gender, the body and more through personal narratives, essays, comics, poetry and art. See the website here: http://www.consented.co.uk/write-for-us/